March 25th, 2015
Bella's BMT Birthday
Day Zero Transplant Day
A Day in Pictures:
One year ago today:
Having the Beads of Courage program for Bella has been so significant for journaling her life in hospital and will give her so much to look back on when she's older. Here's what was in her BOC journal exactly 1 year ago:
In RUH hospital. Saskatoon, Sk.
Bella was only on TPN, no formula feeds.
We did a stoma pouch change
She was given some iron
Put on isolation for showing signs of a cold or fever.
Still having bowel complications and 2 weeks away from her 3rd bowel surgery to remove more of her colon that was effected by Hirschprungs.
On this day last year, a second pathologist report showed her Saskatoon surgeon that they had not removed enough of her colon and it was still causing a blockage.
2 Years Ago Today: March 25th, 2013.
I had just found out I was pregnant! And it was about a week before we told our parents.
Today
8:30am
9:30am
Getting dressed after morning bath.
Bella's surgery to put in the Broviak central line went very well! It is her 4th and the first one on the left side of her chest. They were able to take out the PIV in her arm and the one in her foot last night. So today she can wear her clothes again!
10am
10:30am
Bella is nap'n right now as we wait to go to Rounds with her team of doctors. Sadly rounds are delayed because her team had to go to the PICU for a worse off child. We will patiently wait. It's now 11:30am and we should have the meeting soon to find out exactly when Bella receives her donor cells.
11:45am Rounds Mtg
Ok! So, the donor's cells are still being worked on in the lab at Foothills Hospital. As soon as they are ready they will come over to ACH and Bella will receive them. So no actual time yet. The amount they got from the donor is more than adequate for Bella because she's only 6kg. So they may have to transfuse them into Bella twice today, 4hrs apart. They will also freeze the remaining cells. They can be stored for up to 30 years.
The Transplant Bead I selected for Bella.
A beautiful lighthouse.
2pm
The team is still setting up. There will be Bella's main nurse (Jess) in the room for all of this for at least 3 hrs. Another nurse will use the computer and be in charge of Bella's vitals and reaction meds. A third nurse will audit and make sure all steps are followed in order. The rest of the team will be close by. Here we go!
Transplant Started!
As you can see, Bella was quite excited.
The cells were transfused through Bella's iv at a rate of 12mL/hr. So the transplant was complete shortly after 6pm.
1hr into Transplant: 4pm
So Bella's transplant will be done in 2 parts. The main reason is because the donor's blood is not "compatible." Which just means donor's is B and Bella's is O. The other reason is because they can not overload her with fluids. So we will do this all over again tomorrow morning! But its ok cause everything has gone so well. At most, Bella had some quite high blood pressures but that can be expected.
6:30pm
1st part of transplant complete.
Bella did amazing today, we are so relieved that all went well.
Onward, my strong, vibrant little lovebug... Onward and upward. :)
Hi Kyla - I know you don't know me, I used to know Lyle back in his "younger" days. His cousin Michelle told me about your little girl and this blog. I think you also met a friend of mine a few weeks ago at the hospital, Trish Rooney. I just wanted to say that you guys have a beautiful little girl and have been thinking about you today. You have a very strong little girl and family - I am rooting for you guys!
ReplyDeleteWhat a small world! Thank you so much for posting, it means a lot to me. That's so neet that you know Dom and his parents too. So happy to hear from you. Thank you.
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