Bella had a wonderful Christmas! This year (Being 1y old) we saw her sheer excitement in discovering what it is like to rip open gifts and find out what's inside. She would rip the wrapping paper with this hilarious "shake" and just loved it. Last year in the NICU in Sasktoon, we had a much more quiet Christmas. This year, though still in hospital, Bella had so much fun.
TEST Confirmed:
Bella's Immunologist knew from the start Bella had SCID, she knew she has had an immune deficiency from birth, but the question was how severe? Moderate or Severe? So after she had Calgary lab do all the tests, we found Bella's immune system operates at 4% of normal. So basically no immune system, so very severe. Hence why she is on the "urgent" list for a BMT donor.
Our Immunologist sends this same lab work to a Gold Standard lab in Cincinnati to confirm Calgary's results are accurate. And so we just received that info this past week. And yes, they confirmed Bella's immune system operates at 2% of normal. So yes, it is confirmed that this girl needs a BMT.
It's technically only been 2 weeks since we stared the search for a donor, as Lyle and I are not a match for our baby girl. However we are told Bella has real real good chances at finding a donor in the international data base, and we can't wait to thank that person with every bit of our hearts, for the rest of our lives. We are praying and believing that match person for Bella will be found soon.
Again, we'll have more info on this after our meeting this week.
In the mean time, Bella still has her weekly blood tests, monitoring, physio, etc on Unit 2. Things are going very smoothly right now (minus the ups and downs of teething) but that's a "normal problem"... we welcome those. :) Her purly whites are sure maken that smile cuter and cuter!
No comments:
Post a Comment